Last time I wrote I was informing you all about our findings about me being diagnosed with Cystic Fibrosis. Well, turns out I don’t have CF. We found out my two mutations are on the same side of the allele. Which means Rylee actually has three mutations. How did we find this out? After getting Garretts genetic screening back we found out he only has Marty’s mutation. This is strange because he should have received at least one of my mutations being that we thought I had CF. After receiving all of the kids results it was conclusive that Garrett’s results were true and I don’t have CF. I’m thankful but at the same time I want answers.
About 5 years ago I was diagnosed with Crohns/Colitis. Then in December 2018 I started having a flare up. I FINALLY went to the doctor (different doctor then the first), around March and was diagnosed with Ulcerative Colitis. After trying many diets and drugs we’re still trying to figure out how to get things under control. I just want to feel better.
Life. It goes by so quickly but when you don’t feel good time goes by so slowly. This past summer was hard. It was good but difficult. Haylee asks me regularly, “Mama when do you think you’ll feel better again?” My answer is usually, “I’m not sure but I hope soon.”
Friends. Thank you so much. Thank you for listening and watching the kids often. So many doctors appointments and tests.
Marty. My amazing sidekick. Thank you for being you.
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